Prader-Willi Syndrome (PWS) Resources

What is Prader-Willi Syndrome (PWS)?

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A unique way of experiencing life

Prader-Willi Syndrome is a rare genetic condition that affects how a person’s body grows, how they process feelings of hunger and fullness, and sometimes how they learn and manage emotions. PWS isn’t something to “fix” it’s a lifelong difference that requires understanding, structure, and compassionate support. With the right environment and tools, children and adults with PWS can build independence, enjoy meaningful relationships, and lead fulfilling lives.

Every person with PWS is different

No two people with Prader-Willi Syndrome have the same abilities or challenges. Some may need more support with learning and communication, while others are independent in many areas. Appetite and food-seeking behaviours also vary, as do strengths in social and emotional skills. What’s shared is that each person with PWS brings their own personality, talents, and way of connecting with the world. Recognising and celebrating these unique qualities is essential to helping them thrive.

Support should create safety and build confidence

Because PWS can involve challenges with appetite regulation, impulse control, and physical health, the right supports make daily life safer and calmer. Managing these needs with understanding, not with blame or restriction, helps prevent stress and builds trust. With structured routines, clear communication, and tailored skill-building, individuals with PWS can experience success, confidence, and greater independence.

Championing People with Prader-Willi Syndrome

If you’re raising a child or supporting an adult with PWS, it can sometimes feel overwhelming. The good news is, you don’t need to do it alone. With the right supports and mindset, life can become more manageable and joyful for everyone involved. We focus on understanding, not judgment, working with families and services to create safe environments, practical routines, and strategies that empower the individual to live their fullest life.

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Creating safe food environments

We help design meal routines and food management systems that reduce stress and make daily life calmer and safer.

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Developing routines for daily independence

We create step-by-step supports for personal care, learning skills, and community participation, promoting confidence and autonomy.

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Supporting emotional regulation and coping skills

We provide tools and strategies for managing strong emotions, frustration, or anxiety, helping build resilience over time.

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Encouraging physical activity and healthy habits

We help introduce enjoyable, safe ways to stay active and maintain health, tailored to each person’s needs and abilities.

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Building communication and social understanding

From using clear language to teaching social cues, we support ways for people with PWS to express themselves and connect confidently with others.

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Navigating schools, services, and support systems

From NDIS to education and health planning, we guide families through complex systems and ensure supports are consistent and effective.

How we can help people with Prader-Willi Syndrome?

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Whole Family Developmental Support →

  • Coaching for families to manage routines and daily living tasks

  • Practical guidance for establishing safe, structured mealtimes

  • Tools to help siblings and carers understand and support wellbeing

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Functional Capacity & Needs Assessments →

  • Assessments to guide NDIS planning and funding for supports

  • Recommendations for environmental adjustments and therapy services

  • Clear strategies for building future independence

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Skill-Building and Daily Living Programs →

  • Step-by-step coaching for self-care and household skills

  • Activities to build independence in community and school settings

  • Support for safe physical activity and social engagement

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Positive Behaviour Support →

  • Behaviour strategies to manage food-seeking behaviours safely

  • Plans to support emotional regulation and reduce anxiety

  • Training for carers and educators to provide consistent responses

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Psychology and Mental Health →

  • Therapy to build self-esteem, coping skills, and resilience

  • Support for navigating mood changes or frustration safely

  • Trauma-informed, strength-based approaches tailored to PWS

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Regional Intensives →

  • Practical, in-home support for rural and remote families

  • Training for schools, carers, and local services

  • Developing long-term, community-based support networks

Say G’day today and we can work together to see what we can do to support you.

Hear it from real families

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“Before we understood what was really going on for J, every day felt like a struggle. Our support workers were doing their best, but nothing seemed to click. It often felt like we were all trying to push J into doing things, and the more we pushed, the more he shut down.

When Brooke and her team explained Autism & PDA to us, it was like someone finally turned the light on. We realised he wasn’t being difficult, he was doing everything he could to feel safe and in control.

With Brooke’s help, our whole approach changed. His support workers stopped trying to force things and started meeting him where he’s at by giving him time, space, and choices.

Now, J’s so much more relaxed. He actually wants to spend time with his workers because they see him for who he is. He laughs more, joins in on his own terms, and doesn’t feel like he has to mask or meet anyone else’s expectations.

It’s been incredible to watch him grow into himself, just by being accepted”
- J’s Mum

*Story and photo shared with permission. Not for reproduction.

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Real people. Real experience.
Here for you.

We’re not just professionals — we’re people who get it.

Our team is proudly autistic-led, trauma-informed, and shaped by lived experience. We’ve sat on both sides of the table — as clinicians, as family members, and many of us as neurodivergent individuals ourselves.

We understand that life isn’t always neat or easy, and behaviour support should never feel like a judgement or try to change who you are.

No matter what life looks like for you right now — we walk alongside you.